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A little history on Lesley: we bonded in college over a WWII project in our Public Discourse class. Our group created an interactive experience where our peers could emotionally engage in different aspects of the war—the London bombings, Nazi gas chambers, families receiving news of soldiers killed and the atrocity of the atomic bomb. You know, light stuff like that.
Our goal was for people to “never forget” and I’m pretty sure our class never did.
Though we’ve put our WWII reenactments by the wayside, my friendship with Lesley has remained close. Lesley is a person who asks good questions, listens, and responds wisely. I’m so proud of her as she now embarks on writing a book about her husband, Jonathan (a fellow college friend), battling cancer.
Life has a way of waking you up when your friends start getting cancer. I know how surreal it was for our college group of friends when we got the news about Jonathan; I can’t fathom what it’s like to be the spouse, partner and best friend…
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My life changed rapidly one afternoon last fall. I’d been pacing the house waiting for Jonathan’s phone call about his test results. And when it came, and he said “Cancer,” I collapsed into my chair and fell apart.
I remember sobbing the tears that don’t let you catch your breath; the kind that make you gasp for air and wail in such a way you don’t recognize your own primal sounds. Rocking back and forth, I stared at the blackboard on our kitchen wall. It read, “Sun is shining, weather is sweet, makes you want to move your dancing feet.” I’d written the Bob Marley lyric in August, after I’d given birth to Anna. We’d been living in a dizziness of warmth since then her arrival that I’d never felt before, and certainly didn’t think would end so abruptly.
A couple things happened after Jonathan’s cancer diagnosis. Almost at once, strangers began offering well-intentioned advice about asparagus diets and sperm preservation. While the imposing guidance was really no one’s business but ours, it was easier to digest than some of the commentary around how we should feel.
“You just need to be strong,” they said. And, “You don’t know enough yet—so don’t go there.” By “there,” they meant death. The statements were meant to be encouraging but mostly they just left me confused. While everyone was telling us not to worry, flowers were arriving and pitied looks became the norm.
If there was nothing to be concerned about, why was everyone treating us like death could be right around the corner?
In the weeks leading up to Jonathan’s biopsy, before we knew the type of cancer and the stage, our home life became tense. For one, the mass in his neck was causing increasing pain that made him irritable. Worse, the fear of all the unknowns had stolen the carefree man I knew. And then, of course, there was me. The supposed strong one. He didn’t know it but I was battling ugly voices in my head—ones that were saying, “You could become a young widow” and “She might be your only baby.”
Jonathan certainly didn’t need any more burdens so I listened to others’ advice, the stuff about being strong for him. I kept my own fears hidden and instead poured my attention into researching best doctors and top hospitals. At night he’d come home from work and plop on the couch where he’d quietly stay until bedtime. The dishwasher would hum, the TV would flicker, and I’d putter around in silence until one day, after several weeks of the nonsense, our kitchen became an explosion ground.
I don’t recall how the fight started but most likely he was just minding his own business and I exploded. I remember flipping dinner on the stove as tears rolled down my face and he begged to know why. Finally, I choked out these words:
“I know you’re scared. But have you even thought about me? If you die, YOU DIE. You’ll go to heaven and be with Jesus, and I’ll be the one left here with our baby, without you. And the worst part is I feel like I’m already losing you. You’re shutting me out.”
At the conclusion of my snotty nosed diatribe two things happened almost immediately. I started to feel wonderfully freed from the fears that had been plaguing me for weeks while at the same time I experienced terrible guilt for expressing them to someone who had his own set of worries.
The conversation that took place after my confession was neither easy nor short.
In fact, had it been a scene in a Hollywood movie, most women in the theatre would be doing the ugly shoulder shake cry as he said, “Lesley, don’t you know that leaving you alone is my greatest fear too?”
I verbalized what he didn’t want to say out loud, and while it was achingly painful to work though it’s also when I had a lightbulb moment I’ll never forget:
Both of us had been trying to protect the other by holding our own feelings in, when all it was doing was pushing the other person away.
I had convinced myself that Jonathan couldn’t possibly understand the guilt overtaking me from what seemed like a horribly selfish nightmare of becoming a widow.
Little did I know he was in agony over the very same fear.
Months have passed since that night in the kitchen. Countless doctor’s visits, chemo treatments, and PET scans have officially landed him in remission. He is healing physically; we are healing emotionally.
When I think back to the early days of cancer I realize a lot of well-intentioned people thought they could protect me from feeling the agony of “what-ifs?”
Now I know that talking through the tough stuff is what it looks like to fight the good fight.
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How do you handle well-intentioned people trying to protect you from digging into your emotions?
Are there fears that you’re holding back from your loved ones? Why?
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Love and Respect (Now) is a division of Love and Respect. Please be considerate.
I love your last pieces of advice, Anita! I still struggle with the “carrot juice enema” folks. When going through tough stuff I think it’s okay to sometimes avoid tough people and change the subject. Thanks for taking time to comment!
Thank you for making me cry the ugly cry at 9 am. I think I’m going to need an ice cream cone to recover. I love you and I love your honesty. I cannot wait to read your book, even though now I know that it is going to make me cry really ugly tears.
My intention was not to cause ugly cries at 9am, and my advice would be to recover with a box of girl scout cookies. (Speaking of which, I still need to buy some from your girls!) Thanks for always being so supportive, Claire. Means a lot to me!
Thank you so much for sharing your heart Leslie on something so personal. I look forward to hearing more and keeping up with you guys~ I’ve know about Johnathan’s cancer only recently. I think I’ve been drowning in new motherhood for a while. I’l continue to pray for you guys from here on out. Love-Summer
Thanks for reading, Summer. I know how it goes with new motherhood–sometimes you can’t really come up for air for awhile!
“While the imposing guidance was really no one’s business but ours, it was easier to digest than some of the commentary around how we should feel.”
This resonates with me so much. Having not walked through cancer, or anything even close to that, I can only relate this to how I felt when we found out Everett was breech, and that I would need a c-section. So many people kept saying, “Well at least you’re pregnant! Many people can’t even do that!” or “At least you’re having a healthy baby! Count your blessings!” Those statements were said from good people with good intentions, but all they did was invalidate my feelings. I started to feel like a bad or ungrateful mother because I was sad about needing a c-section, when it was perfectly okay for me to feel sad about it. In fact, Lesley was the first person to remind me that it was okay to be sad about it….she texted me that night and said something along the lines of, “Well this sucks, and I’m sure you’re really bummed about it, and it’s okay to be bummed about it.” She had the best response out of all of my friends and family because more than anyone else, she validated my feelings.
So, thanks Les. I’m grateful to have a group of friends like you in my life who tell me when it’s okay to be sad or frustrated or angry or scared. I only hope and pray that we do the same for you!!
I think validating others feelings is one of the biggest “cancer takeaways” I learned, and I’m so glad it helped you last year. I’ve found that most often people just need to be heard, they’re not always looking for advice. I am trying to be better about asking, “Do you want to know what I think, or do you just need me to listen?” Thanks, Ash, for being supportive and carrying us through last year. We couldn’t have done it without you.
I grew up thinking tears = weakness. Dry up the tears and move on. That’s just how I got over things. Deep conversations weren’t a part of my life, so I just wasn’t used to talking about how I feel. Now, being the super adult figure that I currently am (sarcasm), I cry at Folgers commercials and have learned that until I have these deep conversations, I never feel really whole, if that makes sense.
For what it’s worth, I think you all are incredible. In our close group we had two friends diagnosed with cancer before we were all 30. It was hard from my standpoint. I can’t imagine how hard it was for you all. Can’t wait to read the book!
Totally makes sense! The deep cry conversations with good friends is part of growing in our faith and growing in our friendships.
Lesley, your description of all those wild pieces of advice reminded me that opinions are like armpits: most people got ’em and a lot of ’em stink.
I am so glad that you are now through that period, and that God has been with you and Jonathan through it all. The rawness you expressed here reached out to me across the interwebz, so I think it’s fair to say that God continues to be with you and in your ministry to all of us through your words.
Blessings,
Tim
Thank you, Tim, for saying so! We hope that God will continue to use Jonathan’s story (and mine) to glorify His work.
Anita (@blestbutstrest) thinks...
How I remember those ‘well-intentioned’ people who offered carrot juice enemas as a cure and hangdog looks as an expression of hope and faith. For my husband and I, we didn’t have that honest moment of real communication until he faced the choice of have more radiation and be a virtual vegetable or refuse it and die (about 5 months after diagnosis). He claims the conversation saved his life. I’ve forgotten most of it. If we would have had the conversation sooner, and involved our daughters (ages 8 and 9), I wonder if our collective emotional health would have been better AFTER my husband was miraculously healed.
Do it. Have those hard conversations that bare your emotional soul. Make sure you have them with everyone in the family (at his or her level of development, of course). And as for those ‘carrot juice enema’ people, reply with “Is that a fact?” and change the subject. As for the spiritually unhopeful, feel free to avoid them ;).
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